The story of a non-resident Bangladeshi family establishing and running the famed perfume company Al Haramain and its successful subsidiaries
Of course. That is completely natural for parents of special needs children. There are different phases that families go through after a diagnosis but, ultimately, peace comes when we accept what we have been dealt. All of us love our children unconditionally, and want the best for them, regardless of ability. So, a special needs parent needs to combine acceptance of the situation today with doing everything possible for a better tomorrow - which is actually a good way to live life in general.
Remember that your child is a blessing. Alia has brought so much love into our lives and forced us to rethink what really matters. Little things no longer bother us. We have also learned to appreciate the small gains. But, most importantly, she teaches us empathy and this is a great trait to have and share. Life is bittersweet, but know that a life that involves a struggle to help others is a worthy one. It's a gift that our children with special needs give us.
There are many misconceptions about children with rare diseases and other conditions. The most important one is to not look at their condition as a disability. The UAE calls them People of Determination, and I think that is such a moving way to consider them. Today, I see clearly that the word 'disabled' is imposed on us by society. Yes, Alia has a medical condition, but she is my determined one and I am so proud of what she achieves. She made my husband and I better versions of ourselves - and has given us a purpose to help children like her living with complex conditions.
So, that is probably the most crucial aspect to consider: don't look at what they can't do, look at the possibilities and the things that they can do or have learned to do. When you do that, the world looks so different.
The world is full of possibilities. Make sure your child can experience and enjoy as many of them as possible. Include them in everything because when they feel the love, they will flourish because of it.
The story of a non-resident Bangladeshi family establishing and running the famed perfume company Al Haramain and its successful subsidiaries
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