Baby with swollen head 'doing well'

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Baby with swollen head doing well

A 15-month-old Indian girl whose head has swollen to nearly double its normal size is “doing well”, a doctor said on Friday, but treatment could be complicated by the extreme nature of her case.

By (AFP)

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Published: Fri 19 Apr 2013, 12:48 PM

Last updated: Sat 4 Apr 2015, 12:58 PM

Roona Begum, who suffers from hydrocephalus, a rare disorder that causes fluid to build up on the brain, was discovered earlier this month living with her parents who are too poor to pay for life-saving treatment.

The publication of pictures taken by an AFP photographer in remote Tripura state in northeast India last week saw a top hospital in Delhi offer to examine the child and led well-wishers abroad to set up an online donation fund for her.

Fatima Khatun 25, kisses the head of her daughter, Roona Begum, suffering from Hydrocephalus. AFP Roona’s condition has resulted in her head swelling to a circumference of 94 centimetres (37 inches), putting pressure on her brain and making it impossible for her to sit upright or crawl.

Her doctor, leading Indian neurosurgeon Sandeep Vaishya, who heads neurosurgery at the flagship hospital run by the private Fortis Healthcare group near New Delhi said, “the child is doing well so far”.

But he added: “Her case is very complex so we are currently considering options of how best to proceed.”

The most common treatment involves the surgical insertion of a mechanism known as a shunt, which drains cerebrospinal fluid out of the brain and towards another part of the body where it can be absorbed easily into the bloodstream.

In Roona’s case, however, the huge size of her head relative to the rest of her body complicates matters, according to Vaishya.

“Her head is several times larger than her abdomen, so we have to consider how that much fluid will be absorbed by her body if we put in a shunt,” Vaishya said.

Abdul Rahman, 26,  holds his 18 month old daughter, Roona Begum, suffering from Hydrocephalus. AFP“I am also worried because she has developed a skin condition on the base of her head, suggesting that her scalp is quite delicate, so a shunt could pierce through and leak fluid through the skin, causing other problems,” he added.

Local doctors had told Roona’s parents to take the newborn to a private hospital in a big city but the costs were too high for her 18-year-old father, Abdul Rahman, an illiterate labourer who earns 150 rupees ($2.75) a day.

The website for donations to Roona can be viewed at .. It has already raised more than $34,000.

The US government’s National Institute of Neurological Disorders and Stroke estimates about one in every 500 children suffers from hydrocephalus.

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