Toddler with rare immune disorder needs help

Toddler with rare immune disorder needs help

Two-year-old Jaisen loves playing with his elder sister. He even enjoys spending time outside the house. However, unlike other kids, Jaisen spends more time at hospitals.



by

Muaz Shabandri

Published: Thu 23 Jun 2011, 5:34 PM

Last updated: Thu 2 Apr 2015, 7:41 AM

Doctors have diagnosed him with a rare disorder causing severe abnormalities in the immune system.

Better known as Severe Combined Immune Deficiency (SCID), the disorder affects one in 100,000 children. Fighting to save the little one from his medical condition, the child’s father Arul Selvan and his colleagues have set-up a Facebook group ‘Help Save Jaisen’ to raise funds for his treatment.

‘The medical expenses are mounting and Jaisen needs an urgent bone marrow transplant,’ said Arul who works in the IT sector.

The family has already raised half the treatment expense which amounts to Dh1.5 million. However, Jaisen still needs around Dh750,000 to be able to travel to the Great Ormond Street Hospital (GOSH) in UK which is one of the few hospitals offering treatment for children suffering from SCID.

His only hope of survival depends on a special bone marrow transplant (BMT) which needs constant monitoring and specialised medical care.

‘We still need more than Dh750,000 to meet the medical expense and we have very little time to raise the funds,’ said Arul.

Jaisen is currently in India and is receiving treatment for a viral infection. A group of Arul’s colleagues are making phone calls, sending e-mails, posting Facebook messages and trying their best to help the little kid survive. However, time is running out as it’s already been three days since doctors suggested the transplant.

KT readers willing to help can reach the family at arul.rajaseelan@gmail.com.


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