Society to hold outings for Thalassaemia kids

DUBAI - Celebrating Courage, a day out in the sun for children suffering from Thalassemia and their families, will be held today at the Dubai Creek Park starting at 4pm. The day's activities are organised by the Emirates Thalassaemia Society to mark International Thalassaemia Day.

By A Staff Reporter

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Published: Thu 8 May 2003, 12:30 PM

Last updated: Wed 1 Apr 2015, 10:59 PM

Magic shows, folklore shows, various acrobatic displays, in addition to games for all the families, are planned this afternoon at the creek park. The events is supported by Johnson and Johnson.

Based on studies carried out in the UAE, one in every 12 UAE nationals carries the Thalassaemia gene. Studies also show that most cases of this rare blood disease are the result of inter-marriages among close relatives.

Thalassaemia is the result of the inability of the body to produce adequate amount of Hemoglobin inside the red blood cells. The result is severe anemia. Children suffering from this blood disorder require blood transfusions every month of their lives in addition to treatment for iron overload due to the excessive number of transfusions.

The Emirates Thalassaemia Society was established in 1997 by the parents of child Thalassemia sufferers and is run by volunteers. The organisation works to increase awareness of the disease and to stop the spread of the disease among the local population.

The Genetic and Thalassaemia Centre at Al Wasl Hospital was set up in 1989. The centre handles between 26 and 27 admissions per day, Saturdays through Wednesdays, from 7am to 11.30pm.

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